HOW AND WHEN DID YOU GET RSD?It was 1993. I was at work and fell down one step, which broke my leg and foot. Compound fractures and surgery right away.
IN WHAT WAYS HAS IT AFFECTED YOUR LIFE?I can no longer do the things I used to do. I had to stop working. I’m in a wheelchair now. The pain is unbearable. I stay home a lot.
DO YOU HAVE A GOOD SUPPORT SYSTEM?Yes. My husband, Geno, has been there for me through it all. My parents have been there, too.
DOES FAITH PLAY A PART IN YOUR STRUGGLE OR YOUR STAMINA?Yes. I feel God chose this path for me for a reason and now it’s my job to walk the path and believe God knows best. He will lead me
HOW HAVE YOU REINVENTED YOURSELF?I do crafts and play video games. I am in a group at the YMCA, which I just joined. It’s a pool class called "twinges in the hinges". The rule is: if it hurts, don’t do it. I’m with older adults and they are great. Most of us are in pain, so we understand each other.
HAS ANYTHING GOOD COME FROM THIS TRIAL?Yes, it has strengthened my faith. I do believe that my cat Winston Churchill was God’s gift to me. I found her two years after I got hurt. She was two weeks old. I worked with her and made her strong. In return, she is my rock. She is now eighteen years old. I have other pets that I look to for comfort, too. They look to me, also. Additionally, I have talked to student doctors and taught them about RSD/CRPS.
WHAT DO YOU WANT THE GENERAL PUBLIC TO KNOW ABOUT YOU AND/OR YOUR DISEASE?I want them to know how RSD/CRPS takes our lives, and the burn and hurt we go through on a daily basis. We need more awareness to get more treatments and, maybe, get a cure.
*THESE ARE GENERAL QUESTIONS. IF YOU HAVE MORE TO SHARE, PLEASE DO SO HERE.I have gone through countless surgeries and blocks. I have two SCS systems implanted. I have had all different kinds of medications, PT, and more. I have had RSD for twenty years now. It is never ending. I will be getting ketamine infusion done. We need more. We suffer long and hard. Please help us.
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