HOW AND WHEN DID YOU GET RSD?
They think I got RSD, originally, from Scoliosis back surgery that I had when I was 10 or 11 and am now 29, but it took a collision with a 230lb male ice hockey player to make it evident. At just 117 lb, I twisted and dislocated my knee cap and was finally diagnosed in 1999, but the hockey injury was July 17, 1998.
IN WHAT WAYS HAS IT AFFECTED YOUR LIFE?
I am not able to work.
I am in a lot of pain and have trouble doing daily activities due to the pain.
I have lost friends who do not understand when I have to cancel plans due to not feeling well.
DO YOU HAVE A GOOD SUPPORT SYSTEM?
Yes, through the Internet and some family and friends.
DOES FAITH PLAY A PART IN YOUR STRUGGLE OR YOUR STAMINA?
Yes, it plays a part in both.
HOW HAVE YOU RE-INVENTED YOURSELF?
I try to help others and mentor others who are dealing with RSD, or are new to RSD.
HAS ANYTHING GOOD COME FROM THIS TRIAL?
Yes, helping new-comers, who have been diagnosed with RSD, understand that they are not alone.
WHAT THINGS DO YOU MISS THE MOST?
Being able to play sports, having a normal social life, relationships, and being able to live a normal life day to day.
WHAT DO YOU WANT THE GENERAL PUBLIC TO KNOW ABOUT YOU AND/OR YOUR DISEASE?
That I am there to help people who are younger and new to RSD, if they need someone who understands what it’s like to be newly diagnosed with RSD and know how scary it can be. I have, also, been through multiple treatments for RSD; most with no success, until the pain pump which is what has helped me the most. I was not diagnosed in the first 3-6 months, when you have the best success of controlling the RSD. Rather, my RSD spread quickly and has caused multiple other medical issues, due to complications from the RSD.
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