HOW AND WHEN DID YOU GET RSD?
I got RSD five years ago from a blood clot in my leg.
IN WHAT WAYS HAS IT AFFECTED YOUR LIFE?
It has affected my life totally. I have become house bound, more or less. I have lost 3 stone in weight. I don't sleep. I've lost all my friends and most of my family. I can't work. I'm in a wheel chair a lot of the time. I feel like I'm living in hell!
DO YOU HAVE A GOOD SUPPORT SYSTEM?
No .
DOES FAITH PLAY A PART IN YOUR STRUGGLE OR YOUR STAMINA?
I lost my faith years ago.
HOW HAVE YOU RE-INVENTED YOURSELF?
I don't believe I have, to be honest. I'm stuck because of the lack of awareness. My treatment is not very good. They tell me they don't know enough.
HAS ANYTHING GOOD COME FROM THIS TRIAL?
Yes, views on sufferers.
WHAT THINGS DO YOU MISS THE MOST?
Being able to do things that normally you wouldn't think twice about.
WHAT DO YOU WANT THE GENERAL PUBLIC TO KNOW ABOUT YOU AND/OR YOUR DISEASE?
How the condition affects me, as a person, and my life.
*THESE ARE GENERAL QUESTIONS, IF YOU HAVE MORE TO SHARE, PLEASE DO SO HERE.
I am constantly fighting for treatment and made to feel like a fake or a junky. I think most of RSD sufferers have the same problem .
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