RSD Interview #23 - With Gregory Wilson

HOW AND WHEN DID YOU GET RSD?
I was tackled from behind by a rogue policeman weighing 300 lbs. I weighed 135 and I was weak from just getting over doing a REB-INTRON Interferron Treatment therapy for Hep-C for 5 months. I was the weakest and most DEAD I had ever felt, UNTIL my tailbone hit the cement with his force. Then the Ontario Cops handcuffed me and really ruffed me up by throwing me over the hood, and my leg got caught on the push bar and I passed out from the pain; waking up to them choking me on the ground until I saw FUZZY PURPLE. The police argued the situation, saying they were helping me breathe and I got rough with them. And I lost the case with a public defender, so I could not sue them. Though I did get a $300. check in the mail from the jail, saying they did something wrong to me that day when I was arrested.

My body changed instantly that day. I started having sweat attacks with weird body/spine nagging pain. My body was cold and yet, from my knees down, was on fire; like ants eating away at the flesh from the inside…Red ants, the ones that hurt!
The bottoms of my heels felt as if something metal was pounding on the bottom of them and forcing me to walk on no padding.

IN WHAT WAYS HAS IT AFFECTED YOUR LIFE?
It affected every thing there is to do with life.
*Besides all the pain it created, it changed my sex life dramatically. My girlfriend at the time did not understand what was happening to me and started giving me attitude. And her not caring what it did to me the next day was pretty hurtful.
Ultimately, I started feeling that it wasn’t worth the attitude, the pain flare-up, and me being sick afterward.

*Also, I couldn't cook for myself anymore without something bad happening; like leaving the fire on and burning up whatever was cooking, smoking out the whole house. With all my pets, I could not risk that happening. So I had to go on a liquid diet. My teeth are all bad now because RSD finished them off by grinding them at night. I take enough medication to knock out a horse but don’t feel anything but less pain and have to deal with the perception that creates.
*I have almost committed suicide because of how badly doctors have treated me. Being labeled a drug chaser at two ER hospitals is belittling and really disgusts me. It makes me feel like a piece of crap when, instead, I should be treated with respect.
*I lost the ability to drink water. The more I drank the more I sweat it out and froze doing it.
*I became afraid or people and situations that can cause me harm. I do not go anywhere without my stun guns (3 of them).

DO YOU HAVE A GOOD SUPPORT SYSTEM?
I am building one; thanks to Facebook, RSDSA and my IEHP insurance.
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DOES FAITH PLAY A PART IN YOUR STRUGGLE OR YOUR STAMINA?
Yes, but I pray about it and ask God to direct me to the right people who can help me.

HOW HAVE YOU RE-INVENTED YOURSELF?
I want to become an important part of RSD Awareness (trying to make sure no one has to go through the hell I have had to go through). Stress is a killer, and bad bedside manner by a doctor is not needed with this disease.

HAS ANYTHING GOOD COME FROM THIS TRIAL?
Yes, meeting people with the same disease and similar circumstances.

WHAT THINGS DO YOU MISS THE MOST?
Driving, sitting, laying flat on my back, being pain free in my feet so I could walk, my old personality, and not being scared of the public.

WHAT DO YOU WANT THE GENERAL PUBLIC TO KNOW ABOUT YOU AND/OR YOUR DISEASE?
That I carry 3 stun guns to protect myself from harm.
To leave me alone and not touch me when they see me.
 Just ask how I am, no hugs by surprise.