HOW AND WHEN DID YOU GET
RSD?
In May of 2012, I had surgery to remove Plica from
around the kneecap. Yet, afterward, I was in constant pain and the
doctor said it was from built up scar tissue, so we decided to do
another surgery (to clean it out). Very simple, or so I thought. On
January 24th, 2013, I had surgery. And I woke up in
recovery, screaming and crying in pain. They were giving me Dilaudid
and that wasn’t even helping. They called anesthesia down to do a
nerve block, I was good to go after that J
A few days later, I woke up and my foot was numb and felt like I had
a thousand needles poking me in the foot. It felt horrible. The next
day, I went for my post op appointment and the doctor said it was
probably from the nerve block. It continued throughout the week and,
by Thursday, it was both my foot and my calf. They started turning
purple and splotchy, and hurt so bad. They were so cold, it felt as
if I had been sitting in a tub of ice. Fearing it was vascular, I
called the doctor and they brought me into the office. They told me
it wasn’t vascular and I had good circulation. That was when she
said those horrible words “It's RSD”. L
IN WHAT WAYS HAS IT
AFFECTED YOUR LIFE?
It has drastically changed my life. I am unable to bear
weight on my foot, due to pain. It feels as if I'm stepping on broken
glass or knives slicing my foot. It is the worst feeling to not be
able to get around and do certain things for yourself. I'm stuck on
crutches, and some days I just want to scream!
DO YOU HAVE A GOOD
SUPPORT SYSTEM?
I have an amazing support system. My husband has been so
supportive.
However, even with a good support system, it doesn’t
make it any easier to deal with this.
DOES FAITH PLAY A PART IN
YOUR STRUGGLE OR YOUR STAMINA?
HOW HAVE YOU RE-INVENTED
YOURSELF?
I am newly diagnosed with this monster. I am barely
learning to cope with it. I am sure, down the road, I will find a way
to re-invent myself but right now I am still so angry.
HAS ANYTHING GOOD COME
FROM THIS TRIAL?
I think it is going to help raise awareness of this
disease and help show others what we deal with on a daily basis.
WHAT THINGS DO YOU MISS
THE MOST?
I miss playing with my daughter, going dancing, and
walking, most of all.
WHAT DO YOU WANT THE
GENERAL PUBLIC TO
KNOW ABOUT YOU AND/OR
YOUR DISEASE?
This disease isn’t just in our heads, it is real!! We
deal with so much pain on a daily basis that most people couldn’t
begin to imagine the feeling. Some days the pain is so bad that you
feel like you're on fire, or that you're sitting in a tub of ice, not
being able to function.
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