RSD INTERVIEW #50 - WITH WENDY SWIFT

HOW AND WHEN DID YOU GET RSD?

On November 22, 2010, I had ACL reconstructive surgery from a torn ACL and two fractures, and I developed RSD immediately following surgery.

IN WHAT WAYS HAS IT AFFECTED YOUR LIFE?

I was very active. I worked out, I worked two jobs and volunteered at church, on top of being a wife and a mother. Now I am in bed about eighteen hours a day. I can walk but I use a wheelchair the majority of the day. I have lost family and friends, and felt the emotional burn from RSD.

DO YOU HAVE A GOOD SUPPORT SYSTEM?

Yes, my husband and two daughters. I do receive outside help occasionally.

DOES FAITH PLAY A PART IN YOUR STRUGGLE OR YOUR STAMINA?

Without my faith, I would not be able to survive this disease. I went through a very dark period where I thought that God had abandoned me, and was punishing me. I was suicidal and wanted to give up many times. But He has seen me through that dark time and, incredibly, I have been able to find peace in this disease and have the will to carry on. Without my faith, I would not be here today.

HOW HAVE YOU REINVENTED YOURSELF?

I used to be very impatient. Now, I am more patient. I used to have the need to be in control of everything, I now realize I have no control over any of this and am now accepting of that fact. I feel I am a more peaceful person at this time in my life. I can finally sit still, and not by choice.

HAS ANYTHING GOOD COME FROM THIS TRIAL?

Yes, I am closer to God. It has, also, given me and my family a deeper level of compassion for one another.

WHAT THINGS DO YOU MISS THE MOST?

Getting on my knees and praying every morning,.exercising, and participating in the outside world, in general.

WHAT DO YOU WANT THE GENERAL PUBLIC TO KNOW ABOUT YOU AND/OR YOUR DISEASE?

I would want people to know that this disease is very misunderstood and unfairly judged by many. It rips away so much and the constant excruciating pain is exhausting. This is not just chronic pain, it is chronic pain at the very highest level. I would ask them to care more about educating themselves about RSD to have the support and understanding we so desperately need.