10 Ways To Support Someone With RSD/CRPS

What are the most effective ways to help someone you love who has RSD/CRPS (Reflex Sympathetic Dystrophy/Chronic Regional Pain Syndrome) a debilitating disease involving the nervous system?

Adjusting to an alternate life is challenging, at best, and support is needed in many, different ways. Below are 10 ways to support someone with RSD/CRPS:

• First and foremost, believe that their pain and symptoms are real. Be understanding if plans must be canceled at the last minute due to pain.

• Encourage without pushing - While it’s important for them to keep moving, be mindful that they know their body better than anyone and will be cautious of risks.

• Trust their judgment if they say they need to go to the ER (even if they were just there 2 nights ago).

• Attend doctor visits with them to take notes or offer input. Ask questions to learn what you can about the disease, in order to be knowledgeable and helpful.

• Take them places if driving is difficult for them.

• If standing is hard for them, help with grocery shopping. Help with the cooking or have food delivered. Be willing to use paper plates and cups to eliminate dish washing.

• Help them discover new hobbies or forms of entertainment that are within their limited abilities, as this will keep them busy (distracted from pain) and upbeat.

• Build confidence - Don’t let their disabilities overshadow their abilities. As in any relationship, you should focus on someone’s good points, not their bad. The more you esteem them, the better they will feel about themselves.

• Keep stress at a minimum to help prevent flares.

• Pitch in - Donate to research, have fundraisers, participate in events that raise awareness.

November is “National RSD Awareness Month”. Please join with the RSD community in raising awareness of this debilitating disease. .