HOW AND WHEN DID YOU GET RSD?
MANY years ago, after a bad fall on a concrete driveway. And then crashing into a concrete post in my car a short time later. Though the car accident was the worst, my daughter tells me I was never the same after the fall. There were many injuries over the years, each one leaving me more impaired by not healing properly.
IN WHAT WAYS HAS IT AFFECTED YOUR LIFE?
In every way, really. It affected my livelihood, my parenting, grand parenting, social life, driving, etc. I became unable to cook or bake, carry laundry baskets or grocery bags, do housework, sit on low furniture, climb stairs, step onto or over a doorstep with a ridge, travel, etc.
Ultimately, I had to have groceries delivered to my home. I switched from a shower to a sponge bath when I couldn't get into the tub anymore, and I modified my vehicle when I couldn't press on the foot pedals anymore.
DO YOU HAVE A GOOD SUPPORT SYSTEM?
Yes, I do, but it's dwindled dramatically. I think most people don't know how to deal with such neediness, and many don't want to. Those that leave were not true friends, and those that stay are the unsung heroes.
DOES FAITH PLAY A PART IN YOUR STRUGGLE OR YOUR STAMINA?
Yes, faith is monumental to me, and God sustains me through everything.
HOW HAVE YOU RE-INVENTED YOURSELF?
I’ve gone from being very private to being an open book, because this disease is too devastating to not speak out for awareness.
HAS ANYTHING GOOD COME FROM THIS TRIAL?
Yes, all that I've been through has inspired three books, it has taught me gratitude and is teaching me patience.
WHAT THINGS DO YOU MISS THE MOST?
My independence, and visiting my children's homes.
WHAT DO YOU WANT THE GENERAL PUBLIC TO KNOW ABOUT YOU AND/OR YOUR DISEASE?
That it's real, it's progressive, it's debilitating, and it could happen to them (or their loved one).
*THESE ARE GENERAL QUESTIONS, IF YOU HAVE MORE TO SHARE, PLEASE DO SO HERE.
Don't ever give up...don't lose your spirit!
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