HOW AND WHEN DID YOU GET RSD?
I got RSD due to a work injury in 2007.
IN WHAT WAYS HAS IT AFFECTED YOUR LIFE?
In many ways! I was very independent. I worked and lived a very comfortable life, with really no fear of struggle. Now its really hard just to get through the day. Work Compensation hasn't paid or helped with anything. All expenses came out of our pockets, but the funds and resources are not there for us anymore. We've max’d out everything. My injury is to my dominant hand, which spread throughout my body. I cannot take care of myself like I used to.
DO YOU HAVE A GOOD SUPPORT SYSTEM?
I don't think we have a good support system. My biggest support is my husband. Without him, God only knows.
Work Compensation sent me a letter saying they recognized I got my RSD due to my work injury but I would have to apply for disability because they (Work Compensation) are not going to give me lost wages. Well, I can go on and on. I have no support group, or know of one down here, that is for RSD/CRPS.
I now know we have an orange ribbon to represent this condition. I was like in the dark before I started to talk with people in the states. I also went for pain management because they told me I would get the opportunity to meet other people with RSDS but no one showed up (for 6 sessions), only me and my husband. I was very disappointed. In conclusion, I'm going through a big depression because of this condition, and now they’re thinking insomnia, too.
DOES FAITH PLAY A PART IN YOUR STRUGGLE OR YOUR STAMINA?
Yes, I have faith in God. There is always the question in the back of my mind “Why me?”, but I trust in God that this is where he wants me right now.
HOW HAVE YOU RE-INVENTED YOURSELF?
Well, I use the term that I’m rejuvenating my body.
HAS ANYTHING GOOD COME FROM THIS TRIAL?
I listen to my body more.
WHAT THINGS DO YOU MISS THE MOST?
The freedom of living. It’s winter here, and I cannot put anything on my feet to go outside. I’ve lost many friends and have come to the conclusion “If you can't accept me at my worst, you don't deserve me at my best.”
At all events and family gatherings, that should be quality times, I seem to want to be alone. I want to be in a very quiet environment all the time, as noise gets to me. Let me put it this way…its sort of like being in a room with so many people, but still feeling alone. My family doesn't understand why I exclude myself from them, but they're not supportive of me, or even visit with me.
WHAT DO YOU WANT THE GENERAL PUBLIC TO KNOW ABOUT YOU AND/OR YOUR DISEASE?
For them to not judge me, as they have never walked in my shoes. This can happen to anybody. It wasn't my choice.
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I would just like to be recognized still as a human being. The government and medical staff should look into this condition. It’s worse than giving birth. It’s almost like you can't describe the level of pain. It demoralizes me in many ways. They say God doesn't give you more than you can handle. So he must have a lot of confidence in me. I have enough challenges on a daily basis with this condition. I shouldn't have to worry how I will pay bills or survive. I can't even give myself the proper needs. My body is super sensitive to touch. The last thing I want them to know is that somebody has to really take this health problem seriously, as some people are even being suicidal.
God Bless !
Hi Monique, I also am disabled due to a work injury, workers compensation also;
ReplyDeleteI cannot stress enough how cruel and ridiculous workers compensation treats injured workers.
Due to the consequences of your work injury you are disabled and MUST go through the workers compensation appeals process, this is the only way you will receive the benefits you are entitled to.
Workers Compensation is not treating you fairly or quite frankly, honestly.
They purposely deny benefits of medical care, wage replacement in hopes you will just give-up or die. (They due this to 95% of injured workers) Many just give up as the frustration is just overwhelming, and the added stress causes further pain.
Many injured workers develop PTSD, due to the way their injury claim is administrated.
While workers compensation has millions of dollars which they are intrusted to from employer contributions, they purposely deny / delay / defend, paying rightful benefits.
After extensive investigation into workers compensation, discovery has identified, Insurance Bad Faith, Fraud, Discrimination / Harassment of injured workers to cause severe emotional distress.
In fact it has now been revealed that workers compensation operate a bonus structure that claims adjudicators / claims managers receive cash bonuses for closing claim files and terminating claims, whether the injured worker require operations or have not reached any health recovery.
Injured workers really are medical patients that require medical care, diagnosis / treatment;
However, as previously stated, everything and anything will be used to deny.
I am not sure where you live, but would like you to know, you are in the fight of your life for benefits you are ENTITLED to as a consequence of your work injury.
I recommend you immediately contact libertyadvocacy@rocketmail.com
These people will NOT charge you any upfront money, and only receive a small % of settlement, if and when they are successful.
DO NOT GIVE UP YOUR RIGHTS TO RECEIVE BENEFITS YOU ARE ENTITLED TO !!!
Sincerely BJ;