HOW AND WHEN DID YOU GET RSD?
After being diagnosed in 2008 with Fibro, I was then diagnosed in 2009 with RSD. I'm honestly not sure how I got this disease.
IN WHAT WAYS HAS IT AFFECTED YOUR LIFE?
Completely. I am now on Social Security and I can't dress myself or do any menial tasks, such as: grocery shopping, laundry, emptying the dishwasher, etc.
DO YOU HAVE A GOOD SUPPORT SYSTEM?
Yes. My husband is my caretaker and I would be lost without his help and support.
DOES FAITH PLAY A PART IN YOUR STRUGGLE OR YOUR STAMINA?
It gets hard for me to keep faith, but I try to stay as positive as I can.
HOW HAVE YOU RE-INVENTED YOURSELF?
Sadly, I feel I reinvented myself as a recluse. I rarely leave my house and I’ve lost most of my friends.
HAS ANYTHING GOOD COME FROM THIS TRIAL?
Maybe getting to know myself and my body better, and it helped me appreciate my husband and true friends.
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WHAT THINGS DO YOU MISS THE MOST?
Going out to parties, or just going shopping and trying on clothes.
WHAT DO YOU WANT THE GENERAL PUBLIC TO KNOW ABOUT YOU AND/OR YOUR DISEASE?
That I'm not lazy...it's a real disease.
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