RSD Interview #12 - With Anonymous

HOW AND WHEN DID YOU GET RSD?
While volunteering at a pet store, I was clawed by a frightened cat, which resulted in a myriad of symptoms to my left hand. Sadly, I received wrong treatment for my infection i.e. wrong doctors, wrong testing, wrong medicine; which led to the infection getting into the nerves and soft tissue, ultimately, leading to RSD. The incident occurred in November of 2010. I was diagnosed after one year and became full body four months after that.

IN WHAT WAYS HAS IT AFFECTED YOUR LIFE?
It affected my career as a teacher because I needed to change jobs to get medical benefits.
It affected my extended family relationships because I can no longer travel back home, and they don't understand the changes in me or why I can't come home.
It has changed my day to day life, in many ways. For example, I walk with a cane, my driving is limited to short distances and only in the daytime.
I need help around the house and help setting up my classroom. I can no longer exercise, which was previously a big part of my life. I don't go out socially because of crowds and touching.

DO YOU HAVE A GOOD SUPPORT SYSTEM?
I do have a very good support system, but it's limited.

DOES FAITH PLAY A PART IN YOUR STRUGGLE OR YOUR STAMINA?
Yes, I have faith that I will make it through.

HOW HAVE YOU RE-INVENTED YOURSELF?
I am very different now. I'm making the best of things, and I am determined to continue making positive steps and positive changes along the way.

HAS ANYTHING GOOD COME FROM THIS TRIAL?
Yes. I used to be very negative and now I've become more positive.
Plus, I now get front row parking, thanks to my handicap plate. And RSD Hope's mentoring program has given me much needed support, as well as a friend for life.

WHAT THINGS DO YOU MISS THE MOST?
Dating, high heels, exercise and sunbathing.

WHAT DO YOU WANT OTHERS TO KNOW ABOUT YOU AND/OR YOUR DISEASE?
I want medical professionals to be trained and knowledgeable about the disease, rather than pretending to know and hurting the patient through ignorance. My long term goal is to start a charity to help those with RSD and to fund research that would help in finding a cure.